Barry and EMICT:
I received some help from the Pan Foundation while I was dealing with lymphoma. The funding did not go quite as smoothly as I had thought it would, but I suspect that may have had more to do with the lazy cows in the financial office of my treatment center than any issue with PAN. They did pay a substantial amount of my portion of the chemo. You guys should check into them if you have not by now. There are other organizations with similar goals, Sometimes they do exhaust funds for specific diseases (it's based on donations, so if the donor tells them to use these funds for high-stage, diffuse, T-cell lymphoma that is where it goes). Sometimes they can help, sometimes not.
PAN Foundation
Good luck
Sorry, a bit of a thread drift
Unfortunately, aid from all the organizations - even the big ones like the American Cancer Society - and unfortunately I REALLY DO mean every last one of them - offers aid based on a person’s cancer diagnosis.
And - even though endometrial cancer is the fourth most common cancer among women - itis the ONLY cancer that does not have an organization or charity dedicated to helping women with endometrial cancer.
The closesr cancer to it - ovarian cancer - gets the lions share of funding dedicated to female cancers, even though the number of women newly diagnosed this year in the US will only be around 22,000 according to the American Cancer Society. There IS some funding to help pay for the treatment of women with ovarian cancer, because of that.
What money does not go to ovarian cancer gets directed to cervical cancer, which will hit even fewer women - only about 14,000 this year. Many of those folks are also benefactors of a government program that treats certain breast or cervical cancer patients for free.
But endometrial cancer - which lacks any group to fight for their needs, gets almost no government research dollars, and absolutely none from the private sector. It is the ONLY cancer that does not get help from the private sector.
Some people think that ovarian cancer gets so much funding because it is more deadly than endometrial cancer.
And at one time, that might have been true. But not anymore.
The number of women dying of endometrial cancer has been skyrocketing in recent years. They expect 12,550 women to die of endometrial cancer in the united States this year.
That is almost the same number of women they expect to die of ovarian cancer- 12,880.
The difference is thatthe women with ovarian cancer get lots of support - financially and otherwise.
The women with endometrial - honestly and truly - get nothing.
There is not one single fund that has been willing to help my wife - and it all gets back to the specific organ her tumor originally grew in.
And please do not insult my intelligence by suggesting that such and such an organization will provide support, becaise there are many organizations that make unsubstantiated CLAIMS that might make it sound like they support women with endometrial cancer - like the ones that CLAIM to support all female cancers until you approach them with a lady who has endometrial cancer. Then they back stroke - every one of them.
i have been looking for several years. Professional social workers out of Kentucky have been looking for me. The executive director of the NCCN (National Comprehensive Cancer Network) cannot find anything to help my wife.
If they cannot, do you really think you can?
P.S. Sorry for the sour ending to that message, but every time I try to explain the complete absence of anything at all to help women with endometrial cancer, inevitably somebody who thinks they know better comes back with “well, so and so helped my friend with their ovarian or cervical or even peritoneal cancer, and so they will help you to.”
Well, guess what?
I - or professional social workers with a group in Kentucky that I have worked with - have approached every potential funding source. And that will end up including the one that my reader suggests.
And in the past, I found myself having to spend alot of very frustrating time trying to set that person straight.
I am really tired of people who have not lived with this 24/7/365 trying to tell me I don’t know what I am talking about.
So, sorry again for that sour note, but it did not form out of a vacuum.